A partner of ours would like to survey individuals who are actively engaged in supporting patients and families affected by Niemann-Pick disease type C (NPC) through advocacy, case management, social work, education, or care coordination to better understand experiences, resources, and awareness around patient initiatives and treatment options within the rare disease space. This is a brief screener. If you qualify, you may be invited to a 45-MINUTE INTERVIEW. Qualified participants will receive an HONORARIUM BASED ON a HOURLY RATE. Your EXPERTISE IS HIGHLY VALUED — we hope you'll consider participating. If you qualify and complete this Survey you will be paid $0.00 for your time. The Survey should take about 3 minutes to complete.

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Note: This opportunity is being offered by one of Maven's partners. By clicking the Apply for Consideration button above, you will be directed to the partner's site, where you will be able to submit your survey responses. This survey is NOT being conducted on Maven's platform, but as a Maven participant you are still required to abide by Maven User Terms by providing appropriate, complete, and professional insight and expertise. Our partner will review responses for quality and upon acceptance, you will receive credit from Maven for your participation.

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